Services
Company
Legal and Governance
News
Losing control of life transitions in rare disease – 3 reasons to give this a listen
Written by Gavin Jones, Global Advisor Rare Diseases on Thursday, March 25, 2021
At the start of January, we held our first webinar based on our Rare Thoughts and Outcomes theme 2021.
It was a fascinating discussion on the challenges of transitioning through life for people and families living with rare disease and how we can go about measuring this impact to help drive positive change. As always when speaking with patients and physicians I certainly learnt a lot and took away new perspectives. I realise that investing 60 minutes in something when busy is a stretch but here are three reasons why you should think about doing so:
- This is a key and growing challenge in rare disease that requires cross functional solutions from Pharma to play their part in overcoming them
- Listening to people personally experiencing these challenges knocks us out our bubbles to better understand the real world
- Initial feedback to the dialogue has been excellent
CAN WE HELP?
For information about OPEN Health’s services and how we could support you, please get in touch.
JOIN US
Visit our careers page to view opportunities at OPEN Health.